A cerebral palsy research project
What if you could… run faster, jump further, kick harder and perform at your best?
Join the next step in cerebral palsy research!
We are excited about the possibilities, but we need your help! Read on to find out what our project is all about, and how you might benefit from being part of it. If you have any questions at all or would like to sign up, you can contact Dr Annemarie Wright on 1300 668 482 or enquire now.
About the research project
The Activity Boost Challenge study (or ABC for short) started in 2016. More than 20 families have already been involved. We’re looking for another 15 people to take part before the end of 2018. Could you or someone you know be one of them?
The ABC study is about helping Novita to gain research evidence so we can provide the best treatment for kids and young people with CP in the future. We want to find out whether four specialised physiotherapy (physio) sessions, with or without a device called a WalkAide®, will support your child to be more active and to walk, run and jump better than they can now.
The WalkAide is a small unit that fits around your leg, and is positioned just under your knee. It stimulates the weak muscles that pull your foot up when you walk or run. It is used instead of an Ankle Foot Orthotic (AFO) or other orthotics or braces, and you can wear it even when you’re barefoot! You can also use a WalkAide even if you don’t wear an AFO or other orthotic at the moment.
We know how the WalkAide works and that it is safe for children to use. What we don’t know is whether it will help kids move better than physio sessions alone. We also want to find out who it will work best for and how we can make it work the best possible. We would love your help to find out about these important questions!
Who can apply?
Anyone who is 6-19 years and living with hemiplegic cerebral palsy who can walk and run independently. You don’t have to already be part of Novita to take part.
How will the project work?
There will be two groups of children and young people who take part in the project. Everyone will receive four physio sessions. Children and young people in one of the groups will also be given a WalkAide® device to borrow for 12 weeks. Participants in the physio only group will be offered a chance to try out the WalkAide at the end of the project (if they want to). All sessions in each group will be FREE of charge. The decision of which group a participant is in will be decided using a random system (works like a coin toss).
What will my child be asked to do if they take part?
If your child takes part in the project, they will attend three assessment sessions at Novita’s Regency Park Office or St Marys Office over four months. These sessions will let us find out how much their skills change during the project. If you live in a regional area then the assessments may be able to happen closer to you. You will also attend four physio sessions at your local Novita office, in your home, or with your local physio and you will need to practice physio exercises at home (about 10 mins/ day). Your child will also be given a FitBit (activity monitor) that they can keep after the study is over.
What are the benefits of taking part?
We know that physio is often linked with improvements in walking, running, jumping and balance. We also think that the new assessments your child will do in this project will help their physiotherapist to work on the goals that are important to you.
If you are in the WalkAide+physio group, you will get to try out the WalkAide. You might find it more comfortable to wear than an AFO or other brace. If you are in the physio only group you will be given the chance to try out a WalkAide if you want to at the end of the project.
If you would like more information or are interested in taking part in this project contact Dr Annemarie Wright 1300 668 482 or enquire below.